Thursday, 28 September 2017

First IVF Consultation

Tuesday 26th September 2017
Kingston ACU
Kingston Hospital, London

I was excited but a little nervous while we were waiting for our first IVF consultation at the same hospital I'd been treated at a number of times this year already. The clinic was running late and we had a long wait before we were called into the appointment, which didn't help the with the feeling of imbalance. I couldn't help but look at the other couples in the waiting room, I suddenly wanted to know all their stories. As you can imagine, the demographic was fairly predictable - couples in their late 30's to early 40's.

During the consultation with the Senior Fertility Specialist, Miss Despina Mavridou, we had a baseline scan, which is an internal ultrasound to determine my antral follicle count (AFC). The scan showed a very small number of follicles, two on each ovary to be precise, and my left ovary was tucked high up behind my uterus with little mobility. She discussed that it could potentially be difficult to access at egg collection. I started to feel like we were already fighting a losing battle and we hadn't even started the treatment yet - endometriosis has a lot to answer for! Due to the low AFC and previous blood test results detecting low AMH and elevated FSH levels (a good indication of a woman's ovarian reserve), they decided to put me on the very maximum dose of stimulation drugs. We then went through a number of things in detail, including the reasons treatment might fail, operative risks, side effects and the predicted percentage of success (20%), which I thought was quite high, all things considered.

I'd already started to feel very overwhelmed with information to process but this was nothing compared to how I felt after the second part of our appointment. After a further short wait we were ushered into another room to see lovely nurse Laura MacGreggor to go through a phone book worth of HFEA consent forms that we had to sign and date. This was in fact a contract between the two of us and the clinic outlining all kinds of morbid but necessary scenarios such as:

Do you consent to embryos created before your death being transferred to your partner after your death, and to being registered as the legal parent of any child born from your partner’s treatment after your death (ie, posthumous birth registration)?

We then went through our IVF protocol, highlighting key dates over the next three months. I was frantically trying to scribble everything down as I was so concerned I might mess things up if I had forgotten a vital piece of information (my short-term memory is non-existent). Key things I managed to scrawl on the back of the appointment letter were:

  • Order the IVF medication from Boots
  • Have blood tests (HIV, Hepatitis B & C)
  • Jon to provide (yet another) sperm sample
  • Ring clinic to book a trial embryo transfer (due to previous womb history)
  • Start taking a birth control pill (they know I'm trying to get preggers right?)
  • Start sniffing another drug to turn off my ovaries (see above)
  • Phone in to book 1st scan (down regulation)
  • Start injecting stimulation drugs
  • Egg collection under sedation (preferably knocked out)

Laura then explained that the real embryo transfer would be at a different site at King's College Hospital in Denmark Hill. This means that within minutes of my egg collection, Jon will be handed a medical transportation box (fridge) containing my lovely eggs and he'll have to hotfoot it over to King's on the train where he'll then do his his part of the bargain. The following day, we'll hopefully get a call telling us the magic has happened and we have some beautiful little embryos in a petri dish.

Holy moly.


Guy's Hospital, London

As if my mind wasn't frazzled enough after our consultation, I decided to go to my first ever Endometriosis UK support meeting that evening at Guy's Hospital. I'd joined the London facebook group a few months previous and I'd already gained a lot of information but I wanted to meet ladies in the same position I now found myself in. Jon came with me for moral support as I was feeling very anxious about the session. I'm naturally very shy, especially in situations where I'd be meeting someone for the first time, so this was completely out of my comfort zone. Not one new person, but a whole room of new ladies all with one shared condition.

It turns out I had more than one thing in common with a couple of the ladies there that evening and towards the end of the discussion, a question about infertility and IVF was presented. At the end of the evening I got talking to Tijen and Kelda, both of whom were about to start the IVF process, we swapped email addresses to keep in contact over the next few months. I was aware I was talking really intensely as I blurted out my story to them, I'd had so much information to process that day, I was feeling extremely vulnerable and overwhelmed. On the way home, I had a chance to contemplate everything and I felt happy I had two people I could now talk to.

Monday, 25 September 2017

EndoWhat?

Last night I decided to sit down and watch the film 'EndoWhat' with Jon, something I've wanted to do for a while. It's a very powerful, honest, true-life programme, documenting women's struggles to get diagnosed and the crippling conditions some ladies are forced to live with because their doctors convince them their pain isn't real. It's a good tool for women, men, friends, loved ones and also people in the medical profession to really understand the severity of this disease which is almost a complete mystery to mainstream society. The main topics of discussion are diagnosis, beneficial and counterproductive treatments, anti-inflammatory diets, the impact of the rise in chemical usage and infertility.

While I thought it was a really positive, educational film, I've got myself in a bit of a tizzy as I've now convinced myself that having excision surgery before IVF would be my best option, even though I've been told otherwise. I have my first IVF consultation tomorrow so I guess I just have to put my faith in Mr Kalu, but I am a self-confessed control freak and I feel way out of my depth.

If you fancy getting endo educated, here's the link.



In other news, September has seen a positive change for the endometriosis community in the UK. Brand new NICE guidelines have been released for healthcare professionals, commissioners and women with suspected or confirmed endometriosis. This will hopefully result in ladies getting a painless referral through their GPs, leading to diagnosis and more effective management.

Yay for progress!

Saturday, 23 September 2017

Carefree in Croatia

I'm at my most content when I'm travelling and this trip couldn't have come at a better time. It was bliss to leave all the cycle tracking, temperature taking, peeing on ovulation sticks firmly back at home and have a proper break from everything fertility related.

It was the first family holiday I've been on since I was a teenager almost twenty years ago so I was especially eager for this trip to come around. My mother had never been on a plane (my father was scared of flying and they used to travel everywhere by boat or train) so I was also excited to see her reaction to the maiden flight. I was also looking forward to spending some quality time with my brother, even though we see a lot of him as he currently lives with us, we rarely go away together.


The flight from Gatwick to Split was typically one of the most turbulent I've experienced, I was trying to appear calm (whilst gripping the life out of the armrests) as I was sitting next to Mum and didn't want to alarm her. She didn't seem the least bit bothered of said disruptions and was far too busy taking photos out of the window the whole way there!

Croatia was stunning. After spending two days in Split, we hired a car and drove north to Plitvička Jezera as we wanted to visit the famous Plitvice Lakes National Park. The chain of terraced lakes and waterfalls was one of the most picture-postcard perfect places I have ever had the pleasure of seeing. Even though it was heaving with tourists, it felt peaceful walking along the boardwalks next to the crystal-clear water and I was happy to take in the beautiful scenery whilst contemplating our upcoming journey.

Two days later we drove back to Split and boarded a boat for Hvar island, I'd found an AirBnB apartment in a sleepy little town called Jelsa a few weeks previously. It turned out to be quite basic (I might have miscalculated the bedrooms and Jason had to sleep on sofa cushions in a tiny room adjoining Mum's) but it had a pool and after a few days travelling we all needed a bit of chill time. We had the terrace and pool to ourselves all day and I realised it was the first time in months that I felt completely at ease (did I mention I love the sunshine?) I suddenly regretted not booking more time in Jelsa as the next few months, I'm assuming, will be far from the calm we experienced on Hvar island.

We arrived home after a few more days seeing new beautiful places - we met with Jon's parents on another Adriatic island (Mljet) and spent time in lovely Trogir.

We are finally ready for our next journey. Bring it on.